My Story

     I was an "artsy kid" in highschool, was begged to take all the advanced courses in science and math because of my aptitude, but I only cared about drawing and doing things that were fun like snowboarding and playing guitar.

     When I decided that highschool wasnt for me, I left the place and moved to Ann Arbor, Michigan where I lived with my newly married sister and her new husband. I worked night shifts there at a CVS pharmacy until summer came full swing and i realized i had no friends there, and all my friends back home were going to be leaving my hometown for college soon and it was my last chance to be around them so i picked up and moved back home.

      Shortly after the summer ended I realized that all of my friends had left like I had foreseen and by the winter i was being pushed to make a move. I decided I was going to attend the College for Creative studies in Detroit Michigan where I was going to study animation.

     Things were going fine, although i was unsure about the job security of my course of study. I switched my major around a few times until I settled on illustration and by the time I was in my third semester there, i was actually happy. Had a new apartment with a friend, had 3 classes a week, and 4 hours a day of drawing nude models.

     Shortly after the beginning of my third semester, i was in a gas station and started having, what i was told later by the emergency room doctor, a panic attack. It scared the hell out of me and all i could do was call 911 and wait for the ambulance.

     After being told that it was just panic that i was suffering from, they gave me some medicine to calm my stomach and sent me back home. After walking 3 miles back to my apartment i put myself in my air mattress on the floor, "bed," and went to sleep.

     The next morning I woke up so violently ill, that i had to use the downstairs bathroom so my roommates wouldn't hear what was going on. This lasted for two whole weeks where i was not getting any better. You know how when you have the flu or something and the whole day you cannot wait for when the time comes later in the day when you are tired enough to actually fall asleep and wake up the next morning feeling just, a little bit better? Well that never came. each morning was just as bad as the last night and after a week of not eating food, the only thing there was to throw up was some bile.

     After 5 days of this I was mentally broken and begged my mother to come visit me just so I could feel better knowing I wasnt in control of my own fate any more.

     My parents came that same day. The second they laid eyes on my they were convinced of the severity of my situation. There i was, their son who had just flew the nest not a year earlier, laying like a puddle of sick, sad human being on a half deflated air mattress.

     They ask me one time, do you want to be here any more, and i said no. I started the process for the appealing of my enrollment for the semester and then we instantly began packing my things.

     I spent the next few months laying awake at night suffering with stomach pains, nausea and dizziness. Im not going to get into any more mellow dramatic details but lets just say I spent a long year feeling like i was literally, slowly dying.

     All my doctor could say was that i had some sort of intestinal virus and that i was suffering from general anxiety disorder, and all he wanted me to do was to start taking antidepressants.

     I refused at first but at one point i couldn't take it any more and tried one. It made me feel so much worse that i regretted ever taking it for even the one month i took it.

     A lot of testing, and meetings with the doctor and therapists later, i decided to check out one of the self-help books on anxiety. The book offered some good information about anxiety and the such, but mostly all it kept trying to say is that, "you're okay, this can't hurt you, blah blah.."

     The one thing that makes buying the book for 70 dollars worth it, was that it brought my attention to hypoglycemia.

      I read in this book that a lot of people who suffer from anxiety might actually be suffering from hypoglycemia, which can cause all the symptoms of anxiety.

      Anxiety is your body telling you that something isn't right, or that it is in danger, and for me, i always felt that i was actually not right.

      They tell you that you become anxious about things, then it brings these manifested symptoms, but in my case, it was always these weird symptoms that i would feel that would come first and then i would just become anxious about it.

     But im getting off track here. I asked my doctor to test me for hypoglycemia and whabaam... you have reactive hypoglycemia. well damn, that explains quite a lot now doesn't it. I'm still not convinced that it's what causes all of my problems, but it's definintely a big factor.

     With reactive hypoglycemia, when foods high in sugar or carbohydrates are introduced to the body, the body releases chemicals like insulin to metabolize the sugars in the blood stream. in reactive hypoglycemia, the body metabolizes the sugars too quickly, making the blood sugar rise quickly, and then subsequently, fall dramatically. This rapid rise, then drop in blood sugar is what causes all the symptoms of anxiety which include heart racing, cold sweats, confusing, nausea, etc and when you are unaware that you have hypoglycemia, even panic attacks.

      So that is basically where i am as of now. I'm still going through more testing with the University of Michigan endocrinology department to make sure that my reactive hypoglycemia is not induced by such as a pancreatic tumor like an insulinoma. Also im taking antifungal medication to rule out the possibility of an infection or overgrowth of natural digestive fungal organisms. (I'll talk a little more about this at another time.)


I know the last time i was on this site, i was in a different place of understanding. Still trying to figure out what was wrong with me, why i was feeling like i was and why all the doctors in Michigan could only tell me there was nothing wrong with me, physically at least.

Before, i was looking for answers to why i was anxious, what type of diseases or anything at all that could cause this anxiety that i have been struggling with.

I've come to realize that its not un-natural for your body to sense anxiety when its just in a state of, "dis-ease".

It turns out, that i was right. There really is something physically wrong with me, but it wasn't the "oh shit, is that all"? thing that i was hoping for, the one stop, cure all for it. The easy fix that would send me backflipping into the person i was, before all of this started. I dont want to say anything like, i havent gotten better or i havent made progress whatsoever, because it would be a lie. I've come along way regardless of it all.

My last, and first, post ended with me thinking that i was hypoglycemic and could even be suffering from a bacterial overgrowth in my stomach. Well, i was studied and treated for both problems but it turns out that neither were my problem, although i do, under testing circumstances, do have some sort of reactive hypoglycemic reaction, but that in itself is quite manageable.

For the sake of knowing, i talked to my doctor about getting an MRI. He had told me before that when i was in Detroit, i could of suffered from some sort of viral infection called encephalitis. (i know it sounds like some sexually transmitted disease that Christopher Columbus contracted from a sheep, or something like that.)

According to google;   Encephalitis is irritation and swelling (inflammation) of the brain, most often due to infections. Symptoms: Some patients may have symptoms of a cold or stomach infection before encephalitis symptoms begin.

Sounds pretty damn close to the start of all this.

Anyways, he said that this can cause permanent scarring to your cerebral cortex, and out of plain curiosity, i asked him to do the MRI and check, see if there is some scarring and then maybe i have some sort of concrete evidence as to what started this.

The MRI showed no scarring whatsoever, but it did find a marble sized cyst in the center of my brain. Apparently ive had it since birth, and the cause of which is unknown to the medical community. I read somewhere that it might have something to do  a stage of development in the womb where a cell from something like the blood brain barrier gets lost, and stuck somewhere else in the brain, thus causing the body to react to the material, forming a cyst.

Side note: I realize at this time that i have an issue with keeping things short and sweet being that my posts are far and few between. Ill try and work on that in the future, that is if people actually read this and future posts are warranted. well, heres pissing in the wind right?

Okay... short.. sweet... hmm, okay.

The cyst is on, well in/on, my pineal gland. I could tell from the MRI image before the doctors even talked to me, that it was morphed. It was almost as though the cyst started in the end of the gland itself, then ballooned outward into the cranial fluid pocket directly adjacent to it. It looks like if you were to make a fist with one hand then cover it with your other hand, the fist is the cyst and the covering hand is the gland... pretty close even proportionally.

I was kicked back to the University of Michigan hospital in Ann Arbor to see both Neurologist and Neurosurgeons. They both said the same thing as countless doctors told patients all over the internet who have a pineal cyst; that unless the cyst is large enough to impede on the flow of cranial spinal fluid through the brain, causing hydrocephalus, (water on the brain; basically means, a swollen brain.) They say that they are quite common, something about them being found in 40% of autopsies... they never said what the cause of deaths were for the individuals in which they were found. Although they did say that common sizes are under a half of a centimeter... where mine is 1.3 cm in diameter.

Basically, these doctors say that they are unremarkable and necessary to be operated on because of the way in which they remove them. They go through your face, basically removing it and such which is very, very dangerous. because of the lack of hydrocephalus they, and i, agree that their methods of removal, poses an unnecessary risk.

I looked for a third opinion.

My mother found a video of this kid and his doctor on Ellen, yes Ellen. This kid had a brain tumor and this doctor was making huge strides in endoscopic nuerosurgery. This doctor is of a different school of thought from those at UofM and a lot of other places around the states apparently. He says, that even though these cysts/tumors, are benign, and not cancerous, they stilla re in your brain, taking up a place that is supposed to be filled by something else. Something that is not a tumor. They press on parts of your brain doing things that cause symptoms but are never explained by standard medical tests.

okay, back on track here.  Being that im pretty much.. well poor. This doctor offered to take me on as a patient and assess my situation for whatever my insurance company would cover of the bill, which in the end was nothing. He wanted three things done. First was to see if i could get relief from taking Melatonin supplements, (because the pineal gland is believed to regulate the release of such chemical, which regulates sleep and sleep patterns, and my sleep patterns are horrible, and never seem to get more manageable.) Second, was to have a new specialized MRI done, which studies the flow of the fluid in my brain to see if there was any sort of blockage caused by the cyst. Third, to take a medication called Diamox. This drug reduces the amount of cerebral spinal fluid in the brain to see if symptoms can be relieved by such doing. I reacted violently to the medication, and the MRI proved to be "Inconclusive."

So with both tests showing inconclusive results, I am left with a decision. The doctor says that he is fully confident in his ability to take me through this surgery even with the issue of the pineal gland being affected. He says that i have two decisions at this point. yes or no.. simple as that. I either move on and try to manage my life the way it is, or i go to California and have the surgery. In his words he said that is willing to take "a leap of faith" in my case. Because the medication was intolerable, its impossible to tell if removing the cyst will improve my symptoms at all.

at this point i need to make a decision, not today not tomorrow, but eventually i will have to choose. I suppose its not a choice of just, yes or no, its more like, yes, or... maybe someday, because its not like saying no is really an option, just a matter of "maybe someday".

Basically im stuck between a cyst and a hard place.

So thats where i am now.


  1. fellow cyst suffererNovember 9, 2013 at 7:12 PM

    Excellent read. So do you still have the cyst?

  2. I just found out I have a pineal cyst as well! It seems, if you have to have it removed eventually, that the Skull Base Institute is the best....

    1. I have a 1.76 cm Pineal Cyst. I have been to 3 neuorsurgeons with being the top Neurosurgen in the Country in this field . He is out of Columbia in NYC. The size of my cyst is quite large and is puttin pressure on the Quadrigeminal (Tectal) plates. Open skull surgery is in fact the best way of removal due to the location, however, in many cases the risk outweighs the benefit, as there is no way of determining with 100% certainty if removal of the cyst will stop migraines, etc. I am now looking into having A Bilateral Supraorbital Nerve Supression implant to see if that helps with my migraines. If not, back to the drawing board and revisit removal of the cyst. My suggestion to those who have this same issue is to 1. Make sure you go to a top-tier nuerosurgeon at a multi-disciplinary facility consisting of neurosurgeons, neurologists, and endocrinologists. 2. Be vigilant in seeking the best, least invasive treatment methods 3. Take this seriously and find a dr that takes it seriously, but be logical in understanding that many times these cysts are asymptonatic 4. The location of Pineal region lestions / cysts make it the MOST risky surgical procedure, so please do not look at surgery as your first course of action. 5. Do not become desperate and end up at a regional neurosurgeon that does not have the skill or expertise to properly treat you.

  3. Thanks for sharing your story. I hope you find relief soon.
    My son has what sound like nearly identical symptoms and we just got MRI results showing a 1.7 cm pineal cyst.

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  5. I sympathize with all of you. I ask have a pineal cyst about 1.5 cm dizzy headache nausea and visual disturbances. I also have a benign meningioma tumor at my skull base. I wish I could find someone to remove both of them. Neurology has used me as one huge science experiment. I have tried Botox antidepressants antipsychotics high blood pressure meds (my norm is 90/60?) anticonvulsants NSAIDs and a heavy steroid called decadron. I have had cyberknife radiation on the meningioma. I live about 15 miles from skull base institute and they do both procedures but do not take my insurance. Lac/USC is taking the wait and see approach. Wait and see what? I can not hold a full time job and due to med side effects I have had an appendectomy, sternal fracture from blacking out behind the wheel while driving and daughter taken by state because of hallucinations. It took over 6 months to get her back. Having to prove I was not crazy or abusive just sick. I really hope that you take this decision seriously. This relatively benign diagnosis can lead down some difficult paths in life. Good luck :) stay positive :) ask for and accept help :) most importantly speak your voice ;)

  6. Sorry to hear about your cyst and symptoms. Thanks for writing this... I loved reading through your experience and could relate to much of your post. Reading your story was like reading a page from my own blog.. I'm sorry you're going through this �� You're not alone. I have one too. Mine is 16mm with a rainbow of symptoms to go with it. I've been thinking of taking the plunge and having it removed.
    I haven't blogged in a while but I wrote more about my symptoms here for anyone who might be interested...

    Good luck to you �� Hope you find relief soon - keep us posted on your decision

  7. Hello, I am looking for some help and advise. So my 5yr old daughter had an MRI scan in June and we was expecting the scan to come back with damage to the brain. As she was diagnosed with Hypoxia-Ischemic Encephalopathy grade 2 at birth. But yet we was informed that she has 10mm pineal cyst.

    Since then my daughter has made great progress however she still has learning difficulties, speech and feed difficulties, gross and fine motor skill problems, balance problems, pain in arms and legs mainly after solids exercise, she randomly flaps and jumps around, her eyes go crossed-eye but not all the time but when she does its several times for a time period. She always says the letter "EEEEEEEEEE", her memory short term is terrible and she struggles to put more than once task together (for example think about letters and then writing at the same time).

    Has anyone known of these problems being linked with a pineal cyst? The last contact despite many efforts to make more contact with her consultant was that a pineal cyst was found and she might send her for blood test but shes wasnt sure what was required.....

    I am going out of my mind here any help would be greatly recieved



  8. As a sign of gratitude for how my husband was saved from pineal cyst , i decided to reach out to those still suffering from this.
    My husband was diagnosed of pineal cyst, and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he had weakness of the body , and he always complain of ringing in ears (tinnitus) and headache . we tried various therapies prescribed by our neurologist but none could cure faithful day i decided to go for a researched and i saw a testimony by someone who was cured and so many other with similar brain problem, and he left the contact of the doctor who had the cure to pineal cyst. I never imagine pineal cyst has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months time he was fully okay even up till this moment he is so full of life. pineal cyst has a cure and it is a herbal cure contact the doctor for more info on on how to get the medication. Thanks for reading my testimony

  9. "Dear Williams, I wanted to drop you a note and say 'THANK YOU', from the bottom of my heart. I was browsing the Internet back in AUGUST this year looking for help, any help. I have been diagnosed with a pineal cyst of 7. mm that was extremely causing me a vision balance & headaches , painful especially at night before going to bed. Thankfully enough I accidentally came across Mrs shelley thanking dr williams for his medication. I thought I should give his medicine a try and if it worked then the thirty something bucks would have been worth it. I ordered his medicine and went to my local health store and bought the herbs and vitamins and the other more basic ingredients for his medicine and then started his medication that day. After 7 days I didn't see any change so I thought 'here we go again'. But it wasn't another disappointment. By the end of the 4th week on a bright Monday morning, all the pain,headaches and the awful bloated feeling just stopped. I immediately went and performed another scan and guess what? The pineal cyst of 7. mm was not there anymore. I was so happy!

    Thanks to your advice, I now know how to prevent any future pineal cyst formation and the array of symptoms that goes along with it, including the headache unexpected seizure and visual disturbances. Thank you so much for everything!"for more information you can email him on for advice and for his product.


    Dr Williams,herbal treatment is the best to shrink pineal cyst naturally.

    Four months ago, I was scheduled an operation to remove a fairly large pineal cyst (approx. 8 mm), which had caused me a great deal of headache and tightness around my head. . My doctor insisted that there was no other choice but to go under the knife and I had reluctantly agreed (after trying several medications to decrease the size of the pineal cyst to no avail). It was approx. 2 months prior to the surgery when my husband comes across dr williams herbal remedies which my husband found and ordered for me online. With the help of my loving husband, I followed the step and procedure on how i should be taking it. and one months later I was scheduled for an scan check: it was shocking. The pineal cyst had completely gone, I had consulted my doctor and cancelled the surgery and with his dedicated counseling guidance I managed to completely treat the pineal cyst from my pineal gland , along with the pain and anxiety that this condition had inflicted on me. Thank you so much for your kind help DOCTOR,for more information on how to get his medication you can visit his blog on